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The urgent care doctor was so kind and thorough but did not uncover anything with the blood work he did. Then a week later muscle twitches and a terrifying instance of all over weakness of my whole body from the neck down. My symptoms started with a sudden onset of weakness at the outside of my knees, I was so weirded out. Hi I’ve been reading all the conversations between all of you. any one out there with any answers would be greatly appreciated, day to day living with this is becoming hard to even live with.thanks much Nord (national orginazation of dare deseases have talked to them and they have never heard of begnign fascilation syndrome, so pure bs. i did have 1 here say begnign fascilation syndrome, which is bs, how can it be from stress when happens all day, including weekends, when watching tv, waking from a dead sleep ect, that is just a bs diagnosis of i dont know. Next onto mayo clinic, but scared to go there and spent tons of $ for some bs diagnosis. My b12 when first went in was 309 so low end of normal, but still normal, they put me on 1000mcg of b12 per day for 2 months came up to 541 think but did not help.
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Anyone get any answer i have done tons of testing but no one here can find anything, i know someone is missing something. Killing my life, marriage of 17 years and job.
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Spend 7k on test out of my pocket this year to have no answers. Been put on anti seizure meds, clonazapem, but had to come off of due to bad reaction to it, that was fun a 3 month wheening process, and now gabapentin but only take when needed despirately since it is habit forming also. I have seen 2 neurolgist, had a brain mri, upper and lower therasic mri, emg and tons of blood work done. I out of the blue had my left foot pinky toe start twitching at night for weeks, then went to my legs (thigh and calf) then moved to my feet and then all over and changes places all the time, always mostly left side. I am not opposed to visiting the doctor, I just don't know if a specific doctor would be necessary or any other advice would be helpful. I do not believe that this is a side-effect from my medication, as I have been on these medications the past few years. I also suffer from mild-moderate anxiety. I should also mention that I am prescribed 150 mg Wellbutrin and birth control daily, and have also been taking painkillers as needed for the past few weeks due to surgery. I am worried that these symptoms may lead to something greater, as I am only 20 years old and am not sure if it will become worse as time progresses. I decided to keep track of the frequency of the twitching for a 5 minute span (both laying down and in a sitting position) and it occured around 8-10 times within 5 minutes (varying from fingers, glutes, thighs, calves, etc). The spasms are very rapid and only last for a few seconds. The muscle spasms have only occured in my thighs, calves, and glutes and are not as common. The twitching occurs all over my body, including feet, ankles, calves, thighs, knees, glutes, wrists, fingers, elbow muscles, and biceps. In the last 30-45 days or so, however, I have noticed the twitching both returning and being much more frequent, and also accompanied by muscle spasms as well. The twitching eventually subsided/became less noticeable, and I forgot about it. However, the sleep study did not show any abnormalities in my sleep pattern. At the time I also had trouble sleeping, so my doctor suggested a sleep study, perhaps the twitching was causing my body to not fully fall asleep. The muscle twitches originally started in my feet and legs, and was more of an annoyance than anything. This particular problem started about 5 years ago, however it was much more mild and not as worrying.